Monthly Archives: March 2011

A Few Pictures…and then a Dead Battery;(

013

My beautiful little girl at Children’s hospital right before her CT scan. 

019Little brothers waiting for their big sister to get her CT done.  It was only a few minutes.

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Part of the large aquariums in the ginormous waiting area at Children’s

004Mayah was very proud of herself pushing Gage in the stroller.

014We had pizza night a few weeks ago.  Everyone put something on the pizza.

015

016The beautiful result x2 of course!

Okay….so for some reason my computer was not plugged in and I’m almost out of battery life.  I suppose I’ll have to continue updating tomorrow.  At least I’m getting there, right?

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Quickie Update Across the Board

Every single time I think I’m finding a rhythm with blogging…I lose it.

I’m not sure what my problem is.  I will continue working on it.

Today Gage William turned 2 years old!  I can’t believe it. 

HOPEFULLY tomorrow I will get some pictures posted.  Maybe I will blog tomorrow morning.

SO MUCH has been going on in our lives.  God is leading-we are following.  Wherever that may be. 

Dan and I (and the rest of the crew) have made the wonderful return to our home church.  I never posted we left-but we did-2 months ago for various reasons.  The break was good for us spiritually.  After meeting with one of the pastors last night, he too agreed he couldn’t be sorry we actually left.  What a comforting confirmation from the Lord.

David’s EEG came back normal.  He meets with the sleep team at Children’s Hospital in Mid-April.

Mayah’s surgery is scheduled for next month…also mid-April.  Did I mention that in a previous post or not?  If I did-sorry-but I’m repeating it.  Mayah, when she sleeps, has a regular oxygen level of about 80%.  She never stops breathing but her levels drop very low.  She has mild obstruction sleep apnea.  As a result, she will have her tonsils and adenoids removed (likely, but not guaranteed) and they will install her BAHA implants.  I can’t believe my girl will be fully hearing by the end of the year!!

Last Friday Mayah had an ophthalmology appt at Children’s Hospital.  Her left eye is extremely farsighted and her right eye has a major astigmatism.  The doctor wrote her a rx for glasses which we ordered last Friday afternoon.  I’m hoping to get a phone call saying they are in tomorrow.  I can’t imagine how much her world will change when she can actually see!

I managed to get David and Dan into the eye doc on Tuesday.  Dan’s new glasses will arrive in about 2 weeks and David has perfect eye health!  Alexander goes on Saturday to his first visit to the eye doctor.

Dan has an inguinal hernia and will require surgery on March 8th.  March 7th we return to Pittsburgh to meet with the plastic surgery team for Mayah’s jaw.  She will also see a speech pathologist, I’m looking forward to that meeting.

I need a root canal.  However, with everyone’s appointments and Dan’s surgeries I have to postpone it.  Hopefully I will be able to get that done in the next week or two.

I have a friend, I cannot name her.  She needs your prayers.  She is a very very strong woman, probably the strongest woman I know…she’s awesome and simply needs your prayers.  Specifically for things like: faith, endurance, God’s timing and wisdom.  She’s awesome, two of her “races” are almost finished and that stupid devil is trying his hardest.  Thank you in advance.

I’d LOVE to do an update on Mayah’s speaking and learning.  This week she is totally rockin’ our world with a few sentences she is saying.  Just from being home.  Just from being in our environment.  She is so awesome.  I got to snuggle with her on the couch tonight for a short while.  I loved it so much.  #leaningmamaneedsgirltime

I’m sorry for the time away from blogging…like I said, I hope to get back into it.  Here’s to hoping everyone sleeps in the way they did today!  Then I’ll have plenty of time on my hands to blog.  I was up at 4:30 3 people got up at 7:20 and Mayah came strolling out at 8:30 or so.

Good night.  Thank you for the prayers.  We serve a great God, don’t we?